Abstract Number: PB0491
Meeting: ISTH 2021 Congress
Theme: Hemophilia and Rare Bleeding Disorders » Hemophilia - Basic
Background: In 2019, the Paediatric Haemophilia Team at Oxford Haemophilia Comprehensive Care Centre completed an audit to examine patients/parents experience of immunisation practice within primary care (PC) settings. It was highlighted that further training for health care practitioners (HCP) would be beneficial to improve patient/parent experience when immunisations were due. The Paediatric Haemophilia Team conducted bespoke training for different teams of HCP’s on 2 occasions and also created an immunisation patient information leaflet.
Aims: The purpose of this research is to confirm if patient/parent experience has improved over the last 2 years and if training HCP’s on immunisation practice is helpful and indicated as important practice for Haemophilia centre’s in the UK.
Methods: Two different questionnaires were produced of 10 questions each. The first questionnaire was sent to parents and patients. The second was sent to HCP’s who received immunisation training.
Results: Preliminary data shows that this questionnaire received a response of 26%. These initial responses have shown that current immunisation experience has improved for our patient group. Parents have revealed that anxiety around planning for their child’s immunisation is common. Parents also felt that further training was still required for GP’s and practice nurses in PC settings.
The second survey has an initial response of 25%. The results indicated that training indeed was helpful and that further education on paediatric patients with bleeding disorders was beneficial. The questionnaire also highlighted the need for HCPs to have further training on subcutaneous injections.
Conclusions: This review of patient/parent experience and also experience of HCP’s emphasised that there remains considerable variability in the delivery of immunisations to children with bleeding disorders in primary care. Areas of good practice were identified and training will continue to be offered to other health professionals within the bleeding disorder community.
To cite this abstract in AMA style:
Eales M, Wilkinson A, Pool S, W Hall G, Bhatnagar N. A Review Following Implemented Training for Health Care Practitioners in Primary Care Settings of Immunisation Practice in Children with Bleeding Disorders [abstract]. Res Pract Thromb Haemost. 2021; 5 (Suppl 2). https://abstracts.isth.org/abstract/a-review-following-implemented-training-for-health-care-practitioners-in-primary-care-settings-of-immunisation-practice-in-children-with-bleeding-disorders/. Accessed March 22, 2024.« Back to ISTH 2021 Congress
ISTH Congress Abstracts - https://abstracts.isth.org/abstract/a-review-following-implemented-training-for-health-care-practitioners-in-primary-care-settings-of-immunisation-practice-in-children-with-bleeding-disorders/