Abstract Number: PB1260
Meeting: ISTH 2020 Congress
Background: In 2007, RSA ‘s survey of Adult Transition and Health (SATH) found that only over one half of youth ages 19-23 years reported receiving health care transition suggesting a large portion not receiving anticipatory guidance to support transition care to adult care from their pediatric health care providers. Transition, defined as the purposeful & planned process of educating patients to competently manage their own chronic conditions, is a topic of vital importance to the HTCNV’s lifelong comprehensive care model. Operationally, success is determined by an adolescent’s ability to independently manage their own care by the age of 19.
Aims: to efficiently implement a standardized multidisciplinary anticipatory guidance tool & process without the need of additional staff/resources
Providing focused anticipatory guidance towards medical independence implies better medical outcomes in adulthood
Methods: patients aged 10-19 years who have been diagnosed with a bleeding disorder were evaluated using the Transition Assessment to determine ease of implementation during clinic operations (Capture Rate) and transition assessment and understanding
Results: From the time period 2018-08-24 to 2018-11-24, team members achieved a 79.2% capture rate which exceed target 75%. 19 of 24 patients were assessed. During this timeline 74 pediatric patients were seen in clinic, only 24 of those visits were eligible
Conclusions: Overall, HTCNV able to capture 79.2% of eligible patients, far exceeds the deficits identified by the SATH survey. An analysis of assessment scores found that age and severity of diagnosis may be predictors of successful transition. A severe diagnosis may imply a greater likelihood of clinical interaction. We did not put into consideration of patients with possible learning disorders or limitations. It is possible that certain topics covered in the tool may be more relevant to a young adult (i.e. 18-25 yo) than adolescent but unknown with further data on nature and quality of the educational intervention themselves.
To cite this abstract in AMA style:Cortes D, Shao J, Reyes M. Assessing Anticipatory Guidance Needs in Adolescents with Bleeding Disorders [abstract]. Res Pract Thromb Haemost. 2020; 4 (Suppl 1). https://abstracts.isth.org/abstract/assessing-anticipatory-guidance-needs-in-adolescents-with-bleeding-disorders/. Accessed May 16, 2021.
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