Abstract Number: PB0912
Meeting: ISTH 2020 Congress
Background: Hemophilia is one of the most common challenging congenital bleeding disorder, worldwide. Diagnosis and management of the disorder can be affected be several issues, including economic properties of countries.
Aims: In the present study we assessed current hemophilia situation in Afghanistan.
Methods: All the information on Afghanistan´s hemophilia has been provided by several organization and hospitals since 2011. Esteqlal Hospital, Sehat Tefl (Indera Gandi), Central Blood Bank, Afghan Hemophilia Patients Association and Afghanistan National Charity Organization for Specific Diseases.
Results: To date, few hemophilia patients have been identified in Afghanistan due to lack of health facilities in all provinces of Afghanistan. More than 300 hemophilia patients in Afghanistan, most of them hemophilia A patients and some hemophilia B patients, have been identified. Many of them have migrated to other countries due to numerous problems, especially Iran and Pakistan. In spite of all the problems, Afghanistan National Charity Organization for Special Diseases (ANCOSD) has provided services to these patients in different parts:
Study of genotype of these patients,Identification of Hemophilia Carrier Women and Girls, Identification of patients with RBD, Evaluation of quality of life of these patients, Diagnosis of viral infections in these patients, Inhibitor study in patients with hemophilia, Genetic counseling for the families of these patients.
Conclusions: The World Health Organization and the World Hemophilia Federation should pay particular attention to the hemophilia situation in Afghanistan.
Sufficient access to coagulation factors, specialist medical training, equipping and commissioning of laboratories, physiotherapy and specialized health centers, etc. are essential requirements for these patients.
To cite this abstract in AMA style:Mousavi SH, Mesbah-Namin SA, Jazebi M, Dorgalaeh A, Zeinali S. Current Challenges in Diagnosis and Management of Hemophilia Afghanistan [abstract]. Res Pract Thromb Haemost. 2020; 4 (Suppl 1). https://abstracts.isth.org/abstract/current-challenges-in-diagnosis-and-management-of-hemophilia-afghanistan/. Accessed March 4, 2024.
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