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Patient-centered Digital Health Interventions and their Effects on Health Outcomes: A Systematic Review

1Amsterdam UMC, University of Amsterdam, Emma Children’s Hospital, Pediatric Hematology, Amsterdam, Netherlands, 2Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, Netherlands, 3Feinberg School of Medicine at Northwestern University, Chicago, United States, 4Dutch Association of Hemophilia-Patients (NVHP), Nijkerk, Netherlands, 5The Ohio State University, Columbus, United States, 6Department of Molecular Cellular Hemostasis, Sanquin Research and Landsteiner Laboratory, Amsterdam, Netherlands, 7Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, United States

Abstract Number: PB0641

Meeting: ISTH 2021 Congress

Theme: Hemophilia and Rare Bleeding Disorders » Hemophilia - Clinical

Background: Congenital bleeding disorders have a large impact on patient’s lives due to the high disease burden. Patient-centered digital health interventions, such as patient portals and personal health records, can significantly help engage and empower patients with chronic health conditions, including congenital bleeding disorders. Highly engaged patients have higher knowledge of their disease, more self-efficacy, better self-management, and improved clinical outcomes. However, this relationship is not well-studied and has not yet been investigated thoroughly in congenital bleeding disorders.

Aims: Our aim is to evaluate the most recent evidence for the effects of patient-centered digital health interventions on health outcomes and patient satisfaction, specifically for non-hospitalized children and adults with chronic health conditions, including congenital bleeding disorders.

Methods: We searched MEDLINE, Cochrane Library, CINAHL, EMBASE and PsycINFO databases between 2000 and November 2020. PRISMA guidelines were followed. Two independent reviewers screened titles, abstracts and full-text papers. Eligible studies were original full-text research papers that evaluated an intervention with a digital portal function, intended for non-hospitalized patients with a chronic health condition. Patients with a high disease burden are a subgroup of additional interest. Primary outcomes included clinical and self-reported outcomes. Secondary outcomes included healthcare utilization, treatment adherence, patient satisfaction, feasibility and acceptability.

Results: Our search yielded 7242 unique records. After title and abstract screening, 298 records remained for full-text screening. These are currently being analyzed. Final data will be presented at the conference.

Conclusions: We expect that these results will provide more insight in how patient-centered digital health interventions are utilized and leveraged to improve relevant health outcomes among patients with congenital bleeding disorders.

To cite this abstract in AMA style:

R Brands M, C Gouw S, Beestrum M, Driessens M, Cronin RM, Fijnvandraat K, M Badawy S. Patient-centered Digital Health Interventions and their Effects on Health Outcomes: A Systematic Review [abstract]. Res Pract Thromb Haemost. 2021; 5 (Suppl 2). https://abstracts.isth.org/abstract/patient-centered-digital-health-interventions-and-their-effects-on-health-outcomes-a-systematic-review/. Accessed September 27, 2023.

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