Abstract Number: PB2164
Meeting: ISTH 2020 Congress
Background: Previous research has identified several areas of unmet clinical and support need for cancer patients diagnosed with venous thromboembolism. Data have suggested differences may reflect the diversity of cultures and difference in healthcare services. It is not known whether such experiences can be extrapolated to Eastern and Asian countries where cultural approaches to healthcare have been previously identified.
Aims: To explore patients’ experience of cancer‐associated thrombosis (CAT) within Singapore.
Methods: Purposive sampling of twenty- one patients with CAT were recruited from attending a regional thrombosis clinic in Singapore. Semi-structured were analysed using an applied framework matrix with an inductive approach to identify any new themes. This was in order to explicate differences not apparent in the previous datasets.
Results: Twenty-one patients aged 20-80 participated. The main commonality observed with Western populations was the lack of information regarding CAT. Participants adopted a passive unquestioning role whereby the doctor was always right.
Three major themes were identified:
1. The lack of desire to understand their CAT diagnosis.They were largely indifferent to their diagnosis and the potential complications of this condition.
2. Paternalisic Doctor-Patient relationships which further propagates the educational gap, as many patients lack the initiative/willingness to ask questions to clarify their understanding.
3. A mindset of (unfounded) optimism towards their health: discouraging thinking ‘in a bad way’, with an emphasis on a ‘positive outlook’.
Conclusions: Singapore patients with CAT adopt a passive role with respect to information requirements, as illustrated by the paternalistic treatment of doctors. This societal hierarchy creates a ‘one-way’ communication style and establishes a minimal desire to understand CAT and an unfounded acceptance/optimism.
To cite this abstract in AMA style:Yap E-, Swarnkar P, Nelson A, Noble S, the PELICAN Investigators . Patients Experience of Living with Cancer Associated Thrombosis in Singapore (PELICAN) [abstract]. Res Pract Thromb Haemost. 2020; 4 (Suppl 1). https://abstracts.isth.org/abstract/patients-experience-of-living-with-cancer-associated-thrombosis-in-singapore-pelican/. Accessed February 28, 2024.
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