Abstract Number: PB0988
Meeting: ISTH 2020 Congress
Background: An innovative therapeutic management of hemophilia has been implemented at many hospitals in Japan. However, psychosocial support for hemophilia patients and their families is limited because there are few hemophilia treatment centers which can provide multidisciplinary care and support in Japan. Our hospital is a non-hemophilia treatment center and only medical doctors have seen patients with hemophilia. In 2013, one clinical psychologist joined the adult hemophilia care service. Since then the clinical psychologist has contributed to hemophilia health care, and resolved diverse medical and psychosocial issues.
Aims: This study reports on the assessment of psychosocial issues in mothers of children with hemophilia.
Methods: We evaluated 25 mothers (median age of 42 (range: 27-55)) of children with hemophilia. A clinical psychologist had interviews with patients and/or families independently of doctor’s medical examination, and measured mood and emotion state by POMS2 (Profile of Mood States Second Edition).
Results: The main issues were remorse for their children with hemophilia and their husband´s family, anxiety about patient’s bleeding and genetic problems of offspring. Their POMS2 showed the average scores in both positive mood state and negative mode state, because healthy mood and unhealthy mood were fifty-fifty. We noticed that many mothers were confused. This reflected the relevant mood such as “anxiety”. In addition, we found that there was unhealthy mood in the mothers who have patients with serious problems. They need a clinical psychologist. One year later, Total Mood Disturbance is getting better.
Conclusions: The clinical psychologist had a large impact on hemophilia mental health care and the health-related quality of life in hemophilia patients and families was greatly improved. Addressing the psychological problems in hemophilia is of great value and a clinical psychologist plays an important role.
To cite this abstract in AMA style:Nakao A, Yamanouchi J, Hato T, Takenaka K. The Role of Clinical Psychologist in Mothers of Children with Hemophilia [abstract]. Res Pract Thromb Haemost. 2020; 4 (Suppl 1). https://abstracts.isth.org/abstract/the-role-of-clinical-psychologist-in-mothers-of-children-with-hemophilia/. Accessed March 4, 2024.
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